_____________________________________________________________________
Thank you, Ms. Alonzo, for writing. This is a measure that is being considered on the federal level currently. I understand how devastating this disease can be, as my sister in law had undiagnosed Lyme disease for almost 20 years.
Legislative Assistant to Representative Jeannie Darneille
314 John L. O’Brien Building
360.786.7974 ryan.nancy@leg.wa.gov
To
sign up for Representative Darneille's E-memo, a periodic update on the actions
and issues of the session, go to http://www.housedemocrats.wa.gov/roster/rep-jeannie-darneille/.
Your name and email will be kept strictly confidential.
____________________________________________________________________
Jessica,
Thank you for contacting me about Lyme disease and sharing information about
this debilitating and possibly life-threatening disease. I was unaware of much
of this information.
You might want to also contact the 2 Senators who
represent the State of Washington at the Federal level: Sen. Patty Murray and
Sen. Maria Cantwell. And you might also contact your Congressman. From your
address, I believe that your Congressman is Adam Smith.
I also want you to know that I appreciate the contact and information – however,
I am retiring in November and will no longer be the State Senator from the
27th District – so will not be able to take any formal action in this
regard since the State Legislature does not convene again until January
2013.
Sincerely,
Debbie
Regala
State
Senator – 27th District
_______________________________________________________________________________________
So there you have it. I am now an activist.
There was a House Subcommittee Hearing On Lyme yesterday and it streamed online so I was able to watch it.
The Lyme Disease Association, Inc (LDA) announces that the House Committee on Foreign Affairs, Subcommittee on Africa, Global Health, & Human Rights will hold a hearing 2PM, on Tuesday, July 17, 2012 in 2172 Rayburn HOB in Washington, DC.
The hearing, Global Challenges in Diagnosing and Managing Lyme Disease - Closing Knowledge Gaps, will be webcast and available live via the Committee website here: http://foreignaffairs.house.gov/hearings/view/?1455
US Rep. Christopher H. Smith(NJ) is chairing the hearing.
LDA President Pat Smith will be one of the witnesses presenting testimony─problems with doctors diagnosing and treating Lyme and with patients receiving treatment for Lyme.
Lyme disease numbers have continued to rise nationwide and throughout the world, and the Centers for Disease Control & Prevention (CDC) has indicated that in 2009, Lyme disease surpassed HIV in incidence─ Lyme was the 7th highest in disease incidence reporting. Lyme is no longer a disease of the Northeast. Experts have been seeing a significant increase in ticks and tick-borne diseases in 2012.
Lyme is now found in approximately 65 countries worldwide. From May through mid July of this year, the LDA had an electronic billboard in Times Square, NY, presenting that Lyme disease is found throughout the body and all over the world.
Currently, Congressman Christopher Smith has a bill introduced in the US House of Representatives HR 2557, and Senator Blumenthal has one introduced in the US Senate, S-1381, both calling for a federal advisory committee on Lyme and tick-borne disease with representation from patients, voluntary Lyme organizations, and from doctors and scientists from a broad spectrum of viewpoints on Lyme disease.
The LDA encourages everyone to contact their federal legislators to encourage their attendance. Also notify your state officials to encourage their attendance or viewing of the hearing and notify other officials such as your State Health Department officials and any other individuals that have an interest in Lyme and other tick-borne diseases. Please distribute and post this release to your websites, blogs, newspapers and any other media.
Here is a link where you can read the written testimony. Amazing stuff!
http://foreignaffairs.house.gov/hearings/view/?1455
Here are links where you can watch the taped hearing online. It is in two parts (2 links) because it ran over two hours.
http://www.ustream.tv/recorded/24058724
AND
http://www.ustream.tv/recorded/24060689
There was a House Subcommittee Hearing On Lyme yesterday and it streamed online so I was able to watch it.
The Lyme Disease Association, Inc (LDA) announces that the House Committee on Foreign Affairs, Subcommittee on Africa, Global Health, & Human Rights will hold a hearing 2PM, on Tuesday, July 17, 2012 in 2172 Rayburn HOB in Washington, DC.
The hearing, Global Challenges in Diagnosing and Managing Lyme Disease - Closing Knowledge Gaps, will be webcast and available live via the Committee website here: http://foreignaffairs.house.gov/hearings/view/?1455
US Rep. Christopher H. Smith(NJ) is chairing the hearing.
LDA President Pat Smith will be one of the witnesses presenting testimony─problems with doctors diagnosing and treating Lyme and with patients receiving treatment for Lyme.
Lyme disease numbers have continued to rise nationwide and throughout the world, and the Centers for Disease Control & Prevention (CDC) has indicated that in 2009, Lyme disease surpassed HIV in incidence─ Lyme was the 7th highest in disease incidence reporting. Lyme is no longer a disease of the Northeast. Experts have been seeing a significant increase in ticks and tick-borne diseases in 2012.
Lyme is now found in approximately 65 countries worldwide. From May through mid July of this year, the LDA had an electronic billboard in Times Square, NY, presenting that Lyme disease is found throughout the body and all over the world.
Currently, Congressman Christopher Smith has a bill introduced in the US House of Representatives HR 2557, and Senator Blumenthal has one introduced in the US Senate, S-1381, both calling for a federal advisory committee on Lyme and tick-borne disease with representation from patients, voluntary Lyme organizations, and from doctors and scientists from a broad spectrum of viewpoints on Lyme disease.
The LDA encourages everyone to contact their federal legislators to encourage their attendance. Also notify your state officials to encourage their attendance or viewing of the hearing and notify other officials such as your State Health Department officials and any other individuals that have an interest in Lyme and other tick-borne diseases. Please distribute and post this release to your websites, blogs, newspapers and any other media.
Here is a link where you can read the written testimony. Amazing stuff!
http://foreignaffairs.house.gov/hearings/view/?1455
Here are links where you can watch the taped hearing online. It is in two parts (2 links) because it ran over two hours.
http://www.ustream.tv/recorded/24058724
AND
http://www.ustream.tv/recorded/24060689
Natalia had another seizure on Sunday. I think I'm just fed up with Lyme so I'm ready to do something about it.
No comments:
Post a Comment